The Steps Through OC team is here with comprehensive support to help women, their caregivers and family live a full life while managing ovarian cancer.

Wherever you are in your OC experience, we respect your unique situation and the aspects of life you care about most. Through a series of individual phone calls or videoconferences, our professional OC Counselors are ready to help understand who you are, how you feel, your concerns, and how Steps Through OC can become a trusted partner.

Your OC Counselor can help you:

• Increase understanding of the ovarian cancer experience
• Expand stress reduction skills
• Strengthen communication and self-advocacy skills
• Enhance coping and resilience skills
• Ease emotional burden of diagnosis
• Heighten awareness, hope and meaning
• Work toward a personal goal that is important to you in this process

We listen to your concerns and provide a safe space for conversation and exploration.

All of Clearity's services are provided free of charge.

* denotes required fields

Getting Started

I am a:

Patient or Survivor Caregiver (active), Family member, or Friend of someone diagnosed with cancer

What is your/their cancer diagnosis?

Are you 18 or older?

YesNo

Current Country of Residence:

Language Spoken:

Please Note: There is a Save and Resume option to leave the form and return.

My OC Coordinates Survey

What are your concerns? An ovarian cancer diagnosis comes with many uncertainties. To help guide our initial conversation and address your top priorities, please complete this survey by rating your level of concern regarding the following topics.

Once your registration is completed, an Ovarian Cancer Counselor will reach out to schedule an initial orientation phone meeting with you. Throughout the program, your Steps Through OC Counselor will continue to address your highest priority concerns.

Getting Started

	Not at all	Slight	Moderate	Serious	Very Serious
1. Diagnosis/Surgery: finding a gynecologic oncologist, seeking a second opinion, considering genetic risk factors, undergoing surgery, getting the confirming diagnosis.
2. Communicating with Healthcare Team: sharing concerns, requesting clarification, managing difficult conversations, and enhancing self-advocacy.
3. Deciphering Medical Jargon: understanding gynecologic oncology terms, surgical, diagnostic, pathology reports, and related written and oral information.
4. Distress of Diagnosis: managing the emotional and psychological impact of receiving an ovarian cancer diagnosis.
5. Family and Social Relationships: changing dynamics, shifting roles, and sharing responsibilities with spouse, partner, children, or other relatives, co-workers, and close friends.
6. Weighing Fertility Options: keeping reproductive organs and/or preserving eggs/ova to sustain the possibility of future pregnancy.
7. Cultural Competency: finding racially, ethnically, and culturally responsive resources and support; LGBTQIA competence resources and support or care; resources and support for people with limited to no English language skills.

Practical Matters

	Not at all	Slight	Moderate	Serious	Very Serious
8. Palliative Care/ Pain Management: addressing comfort care and pain control throughout cancer treatment.
9. Home-Based Support: accessing home health, homemaker or household assistance services.
10. Travel & Lodging: finding affordable transportation to medical appointments and treatments including clinical trials; finding lodging for survivors, caregivers, or family during out-of-area diagnostic, treatment, and hospital stays.
11. Financial Concerns: understanding health insurance coverage, co-pays, and statements; coordinating private and government insurance, access to financial assistance programs, and knowing the rights & responsibilities of employees with disabilities and need for extended medical leave.

In treatment

	Not at all	Slight	Moderate	Serious	Very Serious
12. Treatment Options: understanding ovarian cancer standard of care treatments, clinical trial matching, and tumor profiling assistance.
13. Chemotherapy Management: learning about evidence-based and/or peer recommended methods and tips for managing chemotherapy and other treatment impacts.
14. Coping/Resilience: managing distress, anxiety, depression of the emotional aspects of illness and being able to bounce back from ongoing stressful situations.
15. Body Image: addressing the loss of female reproductive organs, surgery scars, hair loss and other physical changes.

Managing Physical & Emotional Symptoms & Side Effects

	Not at all	Slight	Moderate	Serious	Very Serious
16. Connections/ Support: finding ovarian cancer support groups and conversations with other survivors, caregivers, and families; finding peer to peer mentoring, ovarian cancer advocacy organizations and building a personal support network.
17. Identity as a Patient, Survivor, Person: adjusting to self-perception and responses from friends/family during and after cancer treatment; handling well-meaning but misguided stereotypes.
18. Food/Nutrition: making healthy meal choices; consuming nutritious calories while dealing with treatment side-effects; discerning the best options among a spectrum of dietary choices.
19. Energy/Exercise: discovering ways to increase energy, to manage daily activities and maintain a desired fitness level during the ovarian cancer journey.
20. Fatigue/Sleep: addressing treatment fatigue, exhaustion, tiredness, and insomnia.
21. Complementary Therapies: finding integrative mind/body/spirit methods and approaches that may be used as supportive treatment alongside Western medicine.
22. Sexuality: expressing desires and hesitations about intimacy, sexual feelings and sexual health.

When Treatment is Completed

	Not at all	Slight	Moderate	Serious	Very Serious
23. Managing Transitions: shifting away from active treatment and moving back into the routines of daily living; adjusting to the "new normal".
24. Post Treatment Health Management: understanding survivorship care plans and issues once treatment has ended.
25. Recurrence Fear: Addressing constant worry about cancer recurrence after diagnosis, while in remission or during maintenance treatment; understanding recurrence risk.

In Case of Recurrence

	Not at all	Slight	Moderate	Serious	Very Serious
26. Detecting and Managing Recurrence: making decisions if symptoms/ markers appear again; understanding the variety of recurrent disease treatment options; managing follow-ups.
27. Emotional Impact of Recurrence: understanding emotions surrounding recurrence; maintaining hope; managing ongoing uncertainty for oneself, caregiver, and loved ones.
28. Advanced Disease Choices: understanding the pros/cons of continued treatment regimens; quantity vs quality-of-life issues; discussing options with loved ones.

Ongoing Concerns

	Not at all	Slight	Moderate	Serious	Very Serious
29. End of Life Choices / Advance Directives: making decisions and preparing documents to clarify preferences for end of life care, hospice, and life-sustaining measures.
30. Psychological Transition Toward End of Life: understanding mental and emotional shifts from fighting the disease to entering end-of-life transitions; helping family members and loved ones make the shift to acceptance and creating an environment for "dying well".
31. Spirituality: addressing big picture questions about life and death; finding support in belief structure, community or faith.
32. Long-term Survival: managing physical challenges arising from long-term effects of chemotherapy or other treatments; processing mental and emotional challenges arising from all aspects of the ovarian cancer experience.

Personal Goal

What is a personal goal currently important to you:

My OC Coordinates Survey

What are your concerns? An ovarian cancer diagnosis comes with many uncertainties, for survivors as well as caregivers. To help guide our initial conversation and address your top priorities, please complete this survey by rating your level of concern regarding the following topics.

Once your registration is completed, an Ovarian Cancer Counselor will reach out to schedule an initial orientation phone meeting with you. Throughout the program, your Steps Through OC Counselor will continue to address your highest priority concerns.

Please rate these topics as a caregiver, while keeping your loved one in mind.

Getting Started

	Not at all	Slight	Moderate	Serious	Very Serious
1. Diagnosis/Surgery: helping your loved one by finding a gynecologic oncologist, seeking a second opinion, considering genetic risk factors, undergoing surgery, confirming the diagnosis.
2. Communicating with Healthcare Team: helping your loved one with sharing her concerns, requesting clarification, managing difficult conversations with providers and enhancing her self-advocacy.
3. Deciphering Medical Jargon: understanding gynecologic oncology terms, surgical, diagnostic and pathology reports, and related written and oral information.
4. Distress of Diagnosis: managing the emotional and psychological impact of your loved one’s ovarian cancer diagnosis.
5. Family and Social Relationships: changing dynamics, shifting roles and sharing responsibilities with spouse, partner, children or other relatives, co-workers and close friends as a result of cancer diagnosis and treatment.
6. Weighing Fertility Options: supporting your loved one in keeping reproductive organ viability and/or preserving eggs/ova to sustain the possibility of future pregnancy.
7. Cultural Competency: finding racially, ethnically and culturally-responsive resources and support; LGBTQIA competent resources and support; and/or care, resources, and support for people with no or limited English language skills.

Practical Matters

	Not at all	Slight	Moderate	Serious	Very Serious
8. Palliative Care & Pain Management: addressing comfort care and pain control throughout cancer treatment.
9. Home-Based Support: accessing home health, homemaker, or household assistance services.
10. Travel & Lodging: finding affordable transportation to medical appointments and treatments including clinical trials; finding lodging for survivors, caregivers, or families during out-of-area diagnostic, treatment and hospital stays.
11. Financial Concerns: understanding health insurance coverage, co-pays, and statements coordinating private and government insurance, accessing public and private financial assistance programs, and knowing the rights & responsibilities of employees with disabilities and/or need for extended medical leave.

In treatment

	Not at all	Slight	Moderate	Serious	Very Serious
12. Treatment Options: understanding ovarian cancer standard of care treatments, clinical trial matching, and tumor profiling assistance.
13. Chemotherapy Management: learning about evidence-based and/or peer-recommended methods and tips for managing chemotherapy and other treatment impacts.
14. Coping/Resilience: managing distress, anxiety, depression or the emotional aspects of experiencing a loved one's illness and being able to bounce back from ongoing stressful situations.
15. Body Image: supporting your loved one in addressing her loss of female reproductive organs, surgery scars, hair loss and other physical changes.

Managing Physical & Emotional Symptoms & Side Effects

	Not at all	Slight	Moderate	Serious	Very Serious
16. Connections/Support: finding ovarian cancer support groups and conversations with other survivors, caregivers and families; finding peer to peer mentoring, ovarian cancer advocacy organizations and building a personal support network.
17. Identity as a Caregiver: adjusting one's self-perception. Handling well-meaning but misguided comments and stereotypes from friends/family.
18. Food/Nutrition: making healthy meal choices for yourself and your loved one; helping your loved one consume nutritious calories while dealing with treatment side-effects; discerning the best options among a spectrum of dietary choices.
19. Energy/Exercise: discovering ways to increase energy, manage daily activities and maintain a desired fitness level, for yourself or your loved one, during the ovarian cancer experience.
20. Fatigue/Sleep: addressing treatment fatigue, exhaustion, tiredness and/or insomnia as a caregiver, or to help your loved one.
21. Complementary Therapies: finding integrative mind/body/spirit methods and approaches that may be used as supportive treatment alongside Western medicine.
22. Sexuality: expressing desires and hesitations about intimacy, sexual feelings and sexual health.

When Treatment is Completed

	Not at all	Slight	Moderate	Serious	Very Serious
23. Post-Treatment Health Management: understanding survivorship care plans and issues once treatment has ended.
24. Managing Transitions: shifting away from active treatment and moving back into the routines of daily living; adjusting to the "new normal".
25. Recurrence Fear: addressing constant worry about cancer recurrence after diagnosis, while in remission or during maintenance treatment; understanding recurrence risk.

In Case of Recurrence

	Not at all	Slight	Moderate	Serious	Very Serious
26. Detecting and Managing Recurrence: making decisions if symptoms/markers appear again; understanding the variety of recurrent disease treatment options; managing follow-ups.
27. Emotional Impact of Recurrence: understanding emotions surrounding recurrence; maintaining hope; managing ongoing uncertainty for oneself, survivor and loved ones.
28. Advanced Disease Choices: understanding the pros/cons of continued treatment regimens; quantity versus quality-of-life issues; discussing options with survivor and loved ones.

Ongoing Concerns

	Not at all	Slight	Moderate	Serious	Very Serious
29. End of Life Choices/ Advance Directives: supporting your loved one in making decisions and preparing documents to clarify preferences for end-of-life care, hospice, and life-sustaining measures.
30. Psychological Transition Toward End of Life: understanding mental and emotional shifts from fighting the disease to entering end-of- life transitions; helping family members and loved ones make the shift to acceptance and creating an environment for "dying well."
31. Spirituality: addressing big picture questions about life and death; finding support in belief structure, community or faith.
32. Long-Term Survival: supporting your loved one in managing ongoing challenges arising from long-term effects of chemotherapy or other treatments; processing mental and emotional challenges, as a caregiver, arising from all aspects of the ovarian cancer experience.

Personal Goal

What is a personal goal currently important to you:

Steps Through OC ("STEPS") is a virtual support program of The Clearity Foundation ("Clearity") for ovarian cancer survivors and caregivers. Please review the following statements about the STEPS program and confirm your acknowledgment by checking the box provided.

STEPS provides emotional and educational support to help manage the uncertainties of the ovarian cancer experience, including assistance with stress management, resource planning, and accessing social services. STEPS is not intended to provide any medical advice, treatment, diagnosis, or other medical services. STEPS is not intended to provide psychotherapy, crisis management or in-depth mental health services. Clearity does not endorse any particular health care resource. Any changes you wish to make as a result of your participation in our program are subject to your own discretion and should be discussed with your health care provider.

Acknowledged

As a participant in STEPS, you will be matched with an OC Counselor, with whom you will meet by phone or videoconference up to ten (10) times over the course of six (6) months. There are potential risks to videoconferencing technology, including interruptions and unauthorized access. Your assigned OC Counselor will communicate with you exclusively through a secure and confidential platform by videoconference, text message, phone or @clearity.org email address. You should avoid sharing any personal information with your OC Counselor through any other communication channel. Clearity cannot guarantee the privacy or security of personal information sent through any alternative channel.

Acknowledged

Clearity and STEPS will periodically collect information from you with clinical assessments sent through a secure and confidential platform. This information will be securely stored for use by OC Counselors and authorized staff to help assess your needs, deliver support, provide education, make referrals and to recommend future program improvements. You may request access to or deletion of your personal information at any time by providing written notice to Clearity. Except as required by law, Clearity and STEPS will not supply your name, contact information or personal information to any third parties without your prior written consent.

Acknowledged

You may withhold or withdraw this consent at any time by providing Clearity with written notice. Otherwise, this consent will be considered renewed and ongoing upon each meeting between you and your OC Counselor during your participation in the STEPS program.

Acknowledged

In consideration for your participation in the STEPS program, you agree to indemnify, defend, release and hold harmless The Clearity Foundation, their employees, officers, directors, agents, successors and assigns, against all liabilities, claims, causes of action, damages, judgments, costs or expenses, including attorney's fees, caused by, resulting from or which arise in connection with your participation in Clearity’s STEPS program and virtual services.

Acknowledged

Acknowledgement of My Consent

BY CHECKING THIS CONSENT, I CERTIFY THAT:

I have carefully read and consent to the terms and conditions stated herein.

I understand that this document contains a release of claims, which affects my legal rights.

Full Name

Date

Obstetrician / Gynecologist	Gynecologic Oncologist
Medical Oncologist	Surgeon

The Steps Through OC Team is here to provide comprehensive whole-person support so that you can live a full life while managing the impact of ovarian cancer.

Please Note: You can Save and Resume (upper right) during any part of this registration.

Please Note: You can Save and Resume (upper right) during any part of this registration.

Steps Through OC ("STEPS") is a virtual support program of The Clearity Foundation ("Clearity") for ovarian cancer survivors and caregivers. Please review the following statements about the STEPS program and confirm your acknowledgment by checking the box provided.